Home

Welcome.

These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    I started a thread about Medicare for All (M4A) in the Economics of Health Care community. (That's where the discussions should occur, so this thread is locked.) ------------------------------ The chief cause of problems is solutions. Peter Elias ...

  • Posted in: Open Forum

    Open Notes. This  is important regarding our medical records, Open Notes initiative, access to them, and spread. I imagine most of you know about OpenNotes, and some of you might have them and not be aware you do. A white paper on OpenNotes has just ...

  • Posted in: Open Forum

    Here's a nice short (12 minutes) recording of an interview with Emily Transue, MD (works with the Washington State Health Care Authority) sponsored and provided by Catalyst for Payment Reform (CPR). ------------------------------ The chief cause of ...

  • Posted in: Open Forum

    @Soojin Jun , thanks for sharing this part of your background -- I think it's beautiful how you turned such a terrible loss into something so positive! ------------------------------ Tyson Ortiz e-Parent ------------------------------

  • Posted in: Open Forum

    Yes, that is a large one. That may be what was happening. Though Jon was able to upload it. All is good as long as it got here somehow. I will experiment so I figure this out. I'll get this System down eventually. Thanks Peter . ------------------------------ ...

  • Posted in: Open Forum

    A nice blog piece was just published at Kaiser Permanente Washington Health Research Institute- KPWHRI on the PCORI funded LINCC project I served as a PT-Co Investigator on. It is about how the team designed the Community Resource Specialist- CRS intervention ...

  • Posted in: Open Forum

    via my sister the folklorist ...[any q's follow the links - I don't know anything more] The  Southern Oral History Program  (SOHP), housed at the Center for the Study of the American South at the University of North Carolina Chapel Hill, invites artists, ...

  • Posted in: Open Forum

    This contribution by Gerrit Jager, MD to a conversational thread in the Society for Improvement in Diagnosis (SIDM) ListServ seems worth thinking about. It suggests reframing the discussion of safety, but I think it also applies more broadly to many other ...

  • Posted in: Open Forum

    @Gregory Makoul , Thanks for sharing your thoughts, I love the PatientWisdom concept.  Very interesting how the PatientWisdom layer feeds the ProviderWisdom layer to inform and strengthen not only individual but also CommunityWisdom outcomes.  Is this ...

  • Posted in: Open Forum

    Hi Andy - long time!   Thanks for posting this.   The original article is open-access (free) in The BMJ  and has two companion pieces - Improving patient safety? Ask the patient by the famous patient voice Helen Haskell and  Ensure that the family's ...

  • Posted in: Open Forum

    Dave, as I browse each physician site who practices based on a direct primary care (DPC) model, the patient relationship is emphasized as core to their success. Have you looked at the Direct Primary Care Coalition (DPCC) heat map for a sample of such ...

  • Posted in: Open Forum

    Hey Neil: I read your bio and you sound like a poster child for adaptive and resilient behavior. Great job.  Here are a couple of sources: 1) I'd guess you know these guys: I Am Adaptive movement http://iamadaptive.com/ 2) Fellow SPM member Talya Miron-schatz ...

  • Posted in: Open Forum

    Hi Adam - a great and heart-warming post. Thanks!  (It's heart-warming because sometimes this all seems like pushing a rock uphill forever, so it's great to encounter someone who totally  gets  what we've been trying to convey.  Well done! It's so interesting ...

  • Posted in: Open Forum

    And reciprocally, Gerry, that doctors can truly HEAR what patients are saying. ------Original Message------ http://bit.ly/DecPEblog Patient-experience Do we have a heard mentality? By Geri Lynn Baumblatt ...

  • Posted in: Open Forum

    Thank you @Lynda Mitchell !! Very helpful - and no, not off track re: patient advocacy organizations.​ ------------------------------ Vera Rulon MS RHIT FAHIMA Chair, SPM Policy & Advocacy Committee Tir Health Advisors LLC ------------------------- ...

  • Posted in: Open Forum

    Greeting to SPM members everywhere! This is a bit long, but is important to demystify how the SPM is run and to tell you how you can get involved. Like many associations, SPM has concentric circles of leadership (all volunteers) who work tirelessly to ...

  • Posted in: Open Forum

    Thanks, Melanie, for clarifying. I was thinking in terms of SPM as an advocacy initiative, since the next phase will be patient-driven. As I indicated, I will update the group here if I find out if there's any movement on the issue. ------------------------------ ...

  • Posted in: Open Forum

    ---------- Forwarded message --------- From: OpenNotes < myopennotes@bidmc.harvard.edu > New Webinar Series ...

    1 person likes this.
  • Posted in: Open Forum

    John, I came across the website for the American Academy for Family Practitioners .  As their name implies, they work to:   Advance the specialty of family medicine Strengthen members' collective voice Provide solutions to enhance patient ...

  • Posted in: Open Forum

    When I first posted the links, they didn't work. I deleted the links and recreated them and now they work.  If you had trouble before, it may be fixed. Here is a link to a longer article with a much deeper discussion of the same four tiers. https://www.ncbi.nlm.nih.gov/books/NBK22878/ ...

  • Posted in: Open Forum

    I'm working with AHRQ-funded  https://cds.ahrq.gov/cdsconnect  project. We're looking for healthcare org with a  mission to develop patient facing preventive care aligned with the @USPSTF guidelines via portal or tablet in the waiting room. Need an organization ...

  • Profile Picture

    RE: @IvanHandler

    Posted in: Open Forum

    @Ivan Handler , please contact @Elizabeth Rankin off line. Thanks! ​​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office ...

  • Posted in: Open Forum

    @Ivan Handler , please contact Elizabeth offline. ​​​ ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 ...

  • Profile Picture

    RE: SITE

    Posted in: Open Forum

    Thanks, @Cathy Bandy - always praying for you extra when you've not posted knowing the daily health challenges you have are exponentially greater than most.  What I often do is post / save the reply every few minutes if its a long one. That way, then ...

  • Posted in: Open Forum

    Thank you @John Hoben. ------Original Message------ @Elizabeth Rankin , when you want to make sure someone gets your note, please put an "at" sign then their last name which will pop up their SPM member entry name. Select it and they will be notified ...

  • Posted in: Open Forum

    Thank you Lynda for the info. Dee ------------------------------ Dee Sparacio #gyncsm Community Hightstown NJ ------------------------------

  • Posted in: Open Forum

    Hello Claire, Very well appreciated. Will continue to update you on progress and my decision on the approach I decide to use. ------------------------------ Moses Braimah PacificMessages Anthony 2348035012022 ------------------------------

  • Posted in: Open Forum

    On October 24, we had the privilege of having Joe Ternullo speak at a New England HIMSS Student Networking Event. Joe spoke about the role of health informatics in participatory medicine, and he gave me permission to share a recording of his presentation ...

  • Profile Picture

    RE: HIMSS2019

    Posted in: Open Forum

    HI Danny, That is extremely helpful - thank you so much! I will look into Connected Health. Was supposed to attend Health 2.0 in September to speak but had to pull out due to a family issue last minute but hope to go this coming year. Thanks again, ...

  • Posted in: Open Forum

    Welcome, Fred!  'Tis good having you in our midst. What do you hope to achieve with SPM membership? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    My problem with single payer is that it does not go far enough.  For profit hospitals and clinics as well as big pharma will still be running the show which means our tax dollars will be subsidizing private corporations.  We need to take the healthcare ...

  • Posted in: Open Forum

    Be sure to address not just prostate cancer related deaths but all-cause mortality.  I have an intervention that is 100% effective at preventing deaths from prostate cancer: kill the patient the instant the diagnosis is made. No more deaths from prostate ...

  • Posted in: Open Forum

    I went to the site and tried the patient engagement measurement tool. I scored a 69-"activated, confident." I would have scored higher if I'd chosen to answer a couple of questions differently, I'm sure. But I couldn't. They struck me as being ...

  • Posted in: Open Forum

    SPM members (particularly those in the USA) may find this large scale disparity a good framework for solution cooperation. Market driven reform that makes universal insurance coverage tertiary to the patient+physician+clinician+health professional+layperson ...

  • Posted in: Open Forum

    What's everyone's thoughts on this platform called Medmij (corrected to one “j” - cannot edit the title spelling) for developing patient-centric apps?  (Hat tip to @Dave deBronkart for this tidbit - what do you think, @Brennen Hodge ?  https://twitter.com/herkocoomans/status/1062696701176307719?s=21 ...

  • Posted in: Open Forum

    In the last 5 years I have led my place of worship through the Sunday School department which I head to provide free Community drainage fumigation to eliminate mostly mosquitoes that causes malaria and to also provide free medical check, drugs and counselling. ...

  • Posted in: Open Forum

    Thanks Melanie and John for bringing this to our attention.  I'll check it out and see if it might be a good fit.  Best to you all. Jim Skinner ------------------------------ James Skinner Smart Patient Academy New Braunfels TX 8888224770 --------- ...

  • Posted in: Open Forum

    Check out my conversation with Joyce Lee on design thinking in healthcare, hacking the EHR and improving diabetes care. (Audio plays 3x/day. 5 days/wk for 2 weeks then rolls over into podcast archive. Podcast will be embedded in blog post linked below ...

  • Posted in: Open Forum

    Hi Jamie! I looked at the About page  https://salemoaks.com/about/ ... I don't see anything there about any newly published e-learning - what am I missing?  Glad to have you with us! ------------------------------ Dave deBronkart SPM Board & e-Patient ...

  • Posted in: Open Forum

    It's that time again! We will be having our regular bi-monthly Virtual Town Hall meeting. When:  Tuesday, November 20th, 2018 from 7:00 pm to 8:00 pm ET (the third Tuesday of odd-numbered months). Where:  Online with two options for participation: ...

WELCOME.

We're glad you found us.

JOIN US!

 

The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

We encourage you to visit our SPM website, where you can learn much more about us, including:

 

Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
Kenneth P. Yale

Most Active Members (based on last 30 days)