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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Dear Members,  Within the next few weeks we need to hold an election for two members-at-large.  The term for the member-at-large position is one year and they are permitted to serve multiple terms.  Our current members-at-large, Peter Elias ...

  • Posted in: Open Forum

    ​​I attended the Cardiovascular Clinical Trialists Forum in Washington recently. I gave a brief talk on patient cost-sharing for PCSK9 inhibitors. Anyway, I was following up by email with a cardiologist I met at the meeting, and he asked me the following: ...

  • Posted in: Open Forum

    First: I just have to make sure you know that OpenNotes is not a software or a product, it is a quite literally a movement encouraging doctors and other healthcare professionals to share the notes they write with the patients they are caring for. So when ...

  • Posted in: Open Forum

    Thank you for the edit with the explanation. Without an explanation, members have to (1) watch the video to see what it is about; and (2) guess how it might be applicable. ------------------------------ The chief cause of problems is solutions. Peter ...

  • Posted in: Open Forum

    @Tahir Ahmad To successfully market your product in America or the West, You will need to adopt a biblical approach ( no less than a Swiss cheese approach ) in this highly - highly competitive market where the only mantra is the survival of the fittest ...

  • Posted in: Open Forum

    USA Today on wearables, Sensogram gets shoutout Pete Ianace | Dec 7, 2017 https://www.linkedin.com/pulse/usa-today-wearables-sensogram-gets-shoutout-pete-ianace Read more... --- Shared via LinkedIn Sent from my

  • Posted in: Open Forum

    Very interesting article. I was thinking about inflammatory pathways and how they are so often triggered due to a genetic susceptibility (one pathogenic mutation or maybe a few) plus environment. I'm not sure how many inflammatory pathways exist, but ...

  • Posted in: Open Forum

    http://informaticsprofessor.blogspot.in/2017/11/end-of-era-for-academic-informatics.html Is SMART on FHIR the new USB to MicroUSB Cable ------------------------------ Shail Agarwal Bhagwat Prasad Prakash Chand Agra 919997927718 ------------------------------

  • Posted in: Open Forum

    Hi Tyson, I think some local meet-ups would be great. We're having one in Chicago on friday. I've never even met the other members in Chicago. Nothing builds engagement like connecting with others IRL. It would also be great to know when members are speaking ...

  • Posted in: Open Forum

    Hopefully we get a great crowd, feel free to spread the word! ------------------------------ Burt Rosen HealthSparq Portland OR 2034709948 ------------------------------

  • Posted in: Open Forum

    Yes, Michael - this is the organization  @Jan Oldenburg 's friend ended up engaging. Good reports thus far early in the relationship.​ See this topic for background.  ------------------------------ John Hoben Lifetime Member SPM Internal Communications ...

  • Posted in: Open Forum

    Hi Mayank, I don't the specifics of the proposed Medilocker but it sounds like a centralized repository of a consumers' data. I would separate the concept of the repository from 1) the government managing it; 2) the requirement for a single national patient ...

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    RE: The Patient Gown

    Posted in: Open Forum

    @Cathy Bandy , LOVE your latest perpetual patient story! Looking forward to the next installment with great eagerness and anticipation 😁​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    With regard to the issue of seeing original posts and quoting, I agree that the functionality is neither ideal nor typical of other forums I have worked with.  It usually DOES show multiple previous posts but does not consistently show the entire thread. ...

  • Posted in: Open Forum

    Thanks, @John Kahle - I knew that and mistakenly quoted the four letter acronym in a previous post. ​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    @John Hoben Harvard Business Review in its recent article (attached) introduced Ochsner's HDM program "In health care, a similar transition has begun but is moving slowly. One trend is to shift the job of collecting information from clinicians ...

  • Posted in: Open Forum

    Jeanne, I sent a note to a cousin of mine who is a peds professor -- will let you know if it yields anything. Best of luck with this! ------Original Message------ Wow, Thank you so much! Do you know her? ------------------------------ jeanne pinder ...

  • Posted in: Open Forum

      Options Dropdown Hello all, I have a query about Beijing Genomics Institute at Shenzhen, China. The institute was China's representative to Human Genome Project ( Wikipedia) Does anyone have any reference there.? Or anyone who ...

  • Posted in: Open Forum
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    RE: Hypothyroidism

    Posted in: Open Forum

    @Iver Juster , my daughter said she knew the answer to the first three and you nailed it with the fourth question. Yes, indeed. She has other conditions which the lab work she's had done over and over again through various providers over the past 10+ ...

  • Posted in: Open Forum

    @Pete Ianace , see this topic on hypertension and the new guidelines  for a discussion already in progress. ​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    It appears Michael Accad agrees: PREAMBLE: The blood pressure is a physiologic quantity necessary for, and indicative of, human life. The blood pressure normally fluctuates for moment to moment. The range of values encompassed by the blood ...

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    RE: Aging Well

    Posted in: Open Forum

    @Mayank Agarwal - I thought American docs used too many acronyms, but...perhaps they are amateurs. Dressed to kill + Known to Police + Packed to Decimal? Humor aside, I'd suggest always explaining acronyms.  ------------------------------ ...

  • Posted in: Open Forum

    Great point, @Danny van Leeuwen - governance advocacy for participatory patients. What a concept. HRET is the organization I believe you're eluding to via the AHA. One of my dearest hospital administration mentors, Bob Sigmond was instrumental in ...

  • Posted in: Open Forum

    @Tahir Ahmad Did you download the Harvard Radcliffe Report on Exchanging ​Health Information in India.? That's a system building level report and worth reading multiple times. It has taken into account lessons from US, Scandinavia and Australia as ...

  • Posted in: Open Forum

    @Vera Rulon - thought you might find this topic of interest as well as this update on my daughter .  ​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum
  • Posted in: Open Forum

    Good Morning, Great job... Reading your work it's obvious why they asked you to speak. I would love to join you. I've been speaking for most of my life; Conferences and trainings since my College Days. Along with training and conferences, I was a "Substance ...

    1 person likes this.
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    RE: Caregivers

    Posted in: Open Forum

    @Cathy Bandy   Thank you! Good resources, and really appreciate the Case Manager reminder. That could be very helpful. @Peter Elias    Agree. "We are all on the same team approach" is probably one of the best, first ways to deal with apparent, but ...

  • Posted in: Open Forum

    Hello everyone/team, Michael Robkin and I have conferred on post-retreat recommendations and have come up with a list of next steps for Advocacy (below & attached).  Please feel free to comment. Also, if you are interested in helping with advocacy ...

  • Posted in: Open Forum

    Great article. Tx Danny van Leeuwen, Opa, RN, MPH, CPHQ Health Hats 617-304-4681 (c) www.health-hats.com (website) Health Hats Blog @healthhats (Twitter) LinkedIn YouTube channel ------Original Message------ I ...

  • Posted in: Open Forum

    Thanks, @Pete Ianace - would it be ok if I shared here the ten value proposition summary list we discussed today? ​ ------------------------------ John Hoben Lifetime Member SPM Internal Communications Team https://www.linkedin.com/in/johnhoben hoben.john@gmail.com ...

  • Posted in: Open Forum

    ​​http://www.bmj.com/content/359/bmj.j4891 New model for teaching shared decision making to clinicians. The paper mentions that a message asking for comments was circulated on the SPM list serv. Also, I was a patient reviewer for this -- you can see ...

  • Posted in: Open Forum

    https://www.emmisolutions.com/resource/complex-oral-health-data-made-easy-technology/ Wolters Kluwer Fishing for health data-complex oral health data made easy through technology - Wolters Kluwer Epidemiologists ...

  • Posted in: Open Forum

    All, The Center for Business Innovation presents the inaugural Healthcare Messaging Conference & Exhibition , to be held at the   Joseph   B.   Martin Conference Center at Harvard Medical School in Boston on   November 29-30, 2017 . This first-of-its-kind ...

  • Posted in: Open Forum

    I enjoyed working on it and getting to know my collaborator, @Tyson Ortiz . The next educational project for SPM will be bigger. ------------------------------ The chief cause of problems is solutions. Peter Elias Member-at-large of the SPM Board Family ...

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    Personal empowerment

    Posted in: Open Forum
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    RE: Good Morning...

    Posted in: Open Forum

    Thank you, John, with a few further clicks and screen scans I found it My jaw has fallen off, my dizzy head sez "no way"  and  I am in awe. Golly gosh is all I will write, to  cover my thoughts   I am fine, and very excited for David Grayson who organised ...

  • Posted in: Open Forum

    @Peter Elias  and @Dave personal Gmail @e-Patient Dave deBronkart   - was there any discussion ​at this past weekend's SPM board retreat of working with the other organizations within the International Alliance of #Patients Organizations? See ​​​​​ ...

  • Posted in: Open Forum

    Hi, thanks. We've seen this. Their results differ a great deal from our results at a quick test. Here's one example: search on 72148, MRI of the lower back w/o contrast, without insurance, in zip 94103 (San Francisco) and you get this results page ...

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The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

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Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
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