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These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join.

Latest Discussions

  • Posted in: Open Forum

    Can recommend this new podcast. So far Harlan Krumholz has interviewed Hugo Campos, Gregg Gonsalves, Sara Riggare, Liz Salmi. http://yalepodcasts.blubrry.net/category/never_delegate_understanding/ Marilyn ------------------------------ Marilyn Mann ...

  • Posted in: Open Forum

    I agree with Beth. Perhaps if we tweeted about it? If any of us have blogs, we could blog about it?  Tatham's story that started with a lump on her head made me feel better. A friend of mine had triple negative breast cancer about 3 years ago. Recently ...

  • Posted in: Open Forum

    " I want to see patients have direct access to the same information that providers have (or at least access to more of the information that providers have) so that they're not dependent on their clinicians to offer access to information that could be ...

  • Posted in: Open Forum

    @John Hoben I would like to know more about the AHIP conference. Have you ever attended?  Has anyone ever attended? What else do you know about it that is relevant to participatory medicine? I am familiar with some insurance company innovations that ...

  • Posted in: Open Forum

    Wow, Peter, that's the best thing I've ever seen about the agile rationale - and when not to use it.  I'm looking back now at my last few years, thinking about whether I've tried too much to think things out when there's in fact been no clear path forward. ...

  • Posted in: Open Forum

    @erika Brown Thank you for sharing your experience. I was at the first 2 conferences but could not make it to Boston this year. I know what you mean. I am located in Maryland as well - Bethesda.​ ------------------------------ Beth Barnett, RN, BSN, ...

  • Posted in: Open Forum

    Or "engaged patient" -- Dave's ePatient moniker? ------------------------------ Brenda Denzler MedicalPTSD.com Pittsboro NC 919-418-0628 ------------------------------

  • Posted in: Open Forum

    Thanks, Peter - what's the original link just for context? ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 ...

  • Posted in: Open Forum

    Thanks, Dave! @Amber Soucy, MSN RN ​, please let me know how I can help as I will have some volunteer time available this Sunday. ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben ...

  • Posted in: Open Forum

    I agree that the choice of one technology or another is neither the problem nor the solution. I think we should stay with Connect using Higher Logic until other issues have been successfully resolved and there is a clear plan for how a discussion platform ...

    1 person likes this.
  • Posted in: Open Forum

    @Kate Lorig - thanks for permission to share your excellent private response. Yes, please do go “on and on” as you indicated! :-)   ​ The following message has been sent to you in response to your Discussion message Message From: Kate Lorig John, ...

  • Posted in: Open Forum

    John, I will be there and will look for Greg. Are you attending? Kevin Freiert Salem Oaks Consulting ------Original Message------ @Kevin Freiert , will you be in Boston this week?  Please be sure to connect with fellow SPM member, ...

  • Posted in: Open Forum

    Yes, @Janice Tufte - I am ABSOLUTELY OPTIMISTIC beyond measure in our fellow neighbor helping neighbor! All health care is local. Washington, DC is nearly 400 miles away. Here's to the eternal flame burning in each and every fellow human, neighbor ...

  • Posted in: Open Forum

    Thanks, Grace - I am very eager to use Unblock Health! ------------------------------ John Hoben Lifetime Member Society for Participatory Medicine (SPM) https://www.linkedin.com/in/johnhoben hoben.john@gmail.com +1 585 993 8265 office +1 585 370 0847 ...

  • Posted in: Open Forum

    Yes, as a first scroll-through, that table is the eye-grabber.   I'm not sure what diabetes examples you mean, unless it's OpenAPS.org . ------------------------------ Dave deBronkart e-Patient Dave LLC SPM co-founder and past co-chair Co-admin for ...

  • Posted in: Open Forum

    Great seeing this will be streamed live as I have a conflict and will be attending portions remotely.  @Amber Soucy, MSN RN , will there be Q&A capability through the FB Livestream? ​ ------------------------------ John Hoben Lifetime Member Society ...

  • Posted in: Open Forum

    Hi all, this is my last patient engagement blog. I'll still be writing and always looking for co-authors, but I'll be writing a column on the Healthcare Scene. Thanks to everyone who has co-authored these with me since 2013!  @Casey Quinlan , @Danny ...

  • Posted in: Open Forum

    This appears to have been resolved. Thank you. ------------------------------ The chief cause of problems is solutions. Peter Elias Lifetime member Prior Member-at-large of the SPM Board Retired Family Physician Family Physician Auburn ME 207 576-0716 ...

  • Posted in: Open Forum

    Brenda, You raise a valid point: Patient Safety vs. Patients feeling safe. I totally agree. The framework has been limited or at least short-sighted when using the term & when referring to the concept of Patient Safety. I myself recognize the difference ...

  • Posted in: Open Forum

    Check out this amazing #WTFix  blog post by our very own @Burt Rosen Time 2 Meet + Time 2 Talk = Time 4 Change https://whatsthefix.info/time-2-meet-time-2-talk-time-4-change/ ​​​ ------------------------------ Amber Soucy, MSN RN S4PM Board ...

    1 person likes this.
  • Posted in: Open Forum

    Patient Empowerment Network is hosting a #SDOH tweetchat tomorrow, Friday 10/4 at 10am PT. The tweetchat guests include one of our amazing #S4PM2019   conference speakers, Dr. Lisa Fitzpatrick, and our outstanding conference sponsor Healthsparq! ...

  • Posted in: Open Forum

    This guide to help meaningfully include the patient and family community as a partner across the quality measure lifecycle has been developed by a national roundtable convened by the Pharmacy Quality Alliance (PQA), in partnership with the National Health ...

  • Posted in: Open Forum

    Didn't want your post to go unremarked, Dave. But I don't know exactly what I think about these eight mechanisms of co-production of medical practice. I think I need each term elaborated a bit before I can determine what I think of them or know how to ...

  • Posted in: Open Forum

    All-Thanks for your kind wishes, welcome and thoughtful comments.  I look forward to working together to move SPM forward toward achieveing its goals and vision. Thanks, Mary ------------------------------ mary hennings concord ma 978-369-2759 --- ...

  • Posted in: Open Forum

    Please share! Understanding How to Better Support Nurse/Family Caregivers  Increasingly, nurses who help care for their own family members are double duty caregivers. Nurses are often the first ones their families call on. While their clinical ...

  • Posted in: Open Forum

    The point of this post is to get input about replacing Connect from as many members as possible. We need information about what works poorly (or doesn't work) and about what you would need or like in a replacement platform. There has been some discussion ...

  • Posted in: Open Forum

    John, I have to echo @Brenda Denzler Brenda's comments and say that the work has just begun. Most of the news suggest that the source of the immediate problem has been found (infection related to possible UTI and confirmed pneumonia) and hopefully ...

  • Posted in: Open Forum

    After reading Anatomy of an Illness, I streamed the movie on Amazon Prime. Starring Ed Asner as Norman Cousins and Eli Wallach as Dr. William Hitzig. Fun! ------------------------------ Robert Becker Humaginarium LLC Oak Park IL 3127887719 robert.becker@humaginarium.com ...

  • Posted in: Open Forum

    Thank you for sharing this, Maria!  Indeed it can feel like all the work we do isn't getting anywhere, but every bit of the generosity and caring you've given others has clearly altered lives, which is in itself caring. And I strongly suspect that some ...

    1 person likes this.
  • Posted in: Open Forum

    Thank you @Jan Oldenburg for the slides, notes and especially for moving this forward. It sounds as if there was good attendance, good energy, and lots of good discussion. If I understand, the next steps are: Identify a work group willing to take ...

  • Posted in: Open Forum

    The site says you have until 11:59 tonight. Feel free to put things in the template in your own words. That has even more impact. Adrian ------Original Message------ Thanks @Vera Rulon for the reminder and the template. :) Done.​ ------------------------------ ...

  • Posted in: Open Forum

    I did the Doodle poll, based on what is on my calendar as of this evening. The longer we go before a date is picked, the more likely one of the days will be taken. ------------------------------ The chief cause of problems is solutions. Peter Elias ...

  • Posted in: Open Forum

    Peter, you present an excellent case study. In that case, IMHO, because we are not dealing with a once-and-done situation (you vaccinate or you don't), but with a chronic situation (denial of necessary medication followed by relapse and a serious medical ...

  • Posted in: Open Forum

    Well, Peter, doctors are not usually quite that blunt. They don't just come right out and say, "It's your own fault." Rather, that is the message lying behind what they DO actually say.   What the Patient Says: I am having more and more trouble exercising ...

  • Posted in: Open Forum

    Me too -- Danny van Leeuwen Danny@health-Hats.com 617-304-4681 Blog: www.health-hats.com Twitter: @healthhats ------Original Message------ I am eagerly looking forward to a link to the recorded version. Peter ------------------------------ ...

  • Posted in: Open Forum

    By way of clarification, members can now navigate to the Board and ExeCom SIGs and read what is there, but cannot post in either community and cannot 'subscribe' and get email notifications of new posts in either community. Both posting and subscribing ...

  • Posted in: Open Forum

    Hi Adrian This is not a new discussion, but you're making it a false binary. HL7 can't "agree to honor the patient's designated destination for access as their the first priority" because HL7 has nothing to say about priority, only about what is possible. ...

  • Posted in: Open Forum

    Great idea to spread the word about the conference on facebook. Do you have stats on how many people did that? Can we send a similar message to people who have registered for the conference? How to alert on Linked In???  I don't use facebook.  I use ...

  • Posted in: Open Forum

    Danny vanLeeuwen @Danny van Leeuwen Questions about event Do I need to be a programmer to attend? Is this about the specific prototype to address medication management mentioned on the event website?  See copied text below. Is this Learning Network ...

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    RE: Graphics Training

    Posted in: Open Forum

    Cathy,  I appreciate you posting this and sending to our emails also. When I have some set aside time I will browse through the graphics and tools you have provided.  Kindness goes along way.  Thank you! Sincerely  Janice Tufte  ------------------------------ ...

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