Home

Welcome.

These forums and libraries are the platforms SPM uses to communicate, collaborate, and share information about participatory medicine. A small portion of our work is visible for non-members to see, but participation in the discussion (and most of the content) is reserved for SPM members. If you click on a post or topic and get a login screen, it means that post or topic are available only to members. We hope you will look around, like what you see, and become a  member of the Society for Participatory Medicine. Visit our main website to join

Latest Discussions

  • Posted in: Open Forum

    Are you looking for journal articles, blog articles, or both? ------------------------------ Geri Lynn Baumblatt, MA Patient Engagement, Health Literacy, Shared Decision Making, Family Caregiver at Large in the Multiverse Chicago, IL gerilynn@mac.com ...

  • Posted in: Open Forum

    I wanted to make sure that SPM members see this call for nominations specifically seeking patient and caregiver representatives on a technical expert panel (TEP). This is an opportunity to help re-center CMS' performance measurement efforts around what ...

  • Posted in: Open Forum

    The EMR and HIPAA blog has an article today praising an infographic about interoperability in healthcare. The alleged point is that this is a good infographic because of the wide variety of stakeholders. Except...wait for it... patients are NOT included ...

  • Posted in: Open Forum

    Hello SPM!  A colleague from Wolters Kluwer is looking for people to interview - see the information below.  Please contact her at danette.somers@wolterskluwer.com if you're interested in participating, and please feel free to forward to others.  Thank ...

  • Posted in: Open Forum

    I'm relatively new here, so forgive me if this has been discussed before. NQF published a playbook for shared decision making earlier this year.  (A summary of the NQP Playbook™    is here - the playbook itself is $100.) The playbook is organization ...

  • Posted in: Open Forum

    Yes, @Talya Miron-Shatz - thank you for the reality check reminder on perspective. Well said. Point taken.  Hope you have a wonderfully blessed day/week/year/life. Looking forward to meeting you in person (or at least in real time via Zoom) this side ...

  • Posted in: Open Forum

    Sounds like this JAMA article would have been better if it were crowd sourced with SPM members. :)  To me, it sounds like the article is incomplete - there's so much that it left out. A few comments from me: 1. The author references shared decision ...

  • Posted in: Open Forum

    https://www.eventbrite.com/e/nov-7-chicago-participatory-medicine-meetup-tickets-51337352403?ref=eios&aff=eios Eventbrite Nov. 7 Chicago Participatory Medicine Meetup! Our next Chicago SPM meetup is set ...

  • Posted in: Open Forum

    My story of transition, which started 2.5 years ago https://www.connect-cx.com/blog/2018/10/9/from-deep-expertise-to-broad-experience ------------------------------ Mark VanderKlipp Connect_CX Evanston, IL 2316315107 ------------------------------

    1 person likes this.
  • Posted in: Open Forum

    Thanks Wheezy! Easiest way to do this is post a URL to a tweet or FB post so people can click and reshare. Got some handy? I'm on the fly, will try later if nobody else does ... ------Original Message------ Hello all! If any of you are ...

  • Profile Picture

    Social Media!

    Posted in: Open Forum

    Hello all! If any of you are active on social media, now is the time to do our final push for registration for our annual conference! If you follow SPM on twitter, facebook, linkedin, youtube, etc, please cross-post and share with your audiences and ...

  • Posted in: Open Forum

    Jim, this additional material looks fantastic. It was delightful catching up with you by phone Friday. Looking forward to seeing you in Texas the next time I'm in the Houston area. John ------------------------------ John Hoben Lifetime Member Society ...

  • Posted in: Open Forum

    Can someone please write a few lines about the last town hall meeting for the Newsletter?  I need it by the end of next week. 10/19.  Thanks ------------------------------ Danny van Leeuwen Health Hats www.health-hats.com @healthhats -------------- ...

  • Posted in: Open Forum

    Most of us won't be surprised by the results of this survey by JAMA re difficulties in getting medical records from hospitals in a timely manner.  The story is so relevant to the SPM conference -- and a topic to consider for the manifesto to be created ...

  • Posted in: Open Forum

    We have (at least) one member reporting that their credentials for logging in do not work, forcing them to reset their password, but that the next time they login they have to reset their password AGAIN. And again the next time. Wash, rinse, repeat. ...

  • Posted in: Open Forum

    Please please - click the social media links and RT / re-share them.  It takes literally just 2 clicks and really amplifies awareness of our event. We've got this process down to a science now, and next year we'll want to start it much earlier, but even ...

  • Posted in: Open Forum

    Hi Erin, I'm really biased, since I used to work on the Google Hotels product, but... you might want to try that option :).  Just go to Google, search for " Boston hotels ," and then click "View [xxx] hotels." If you're a Google One member, you'll ...

  • Posted in: Open Forum

    Thanks for writing this post, Dave. I think the blog posts about the speakers have been fantastic for promoting the conference.  Note, I not only clicked and shared on Twitter I also commented on the blog post.  Janice ------------------------------ ...

  • Posted in: Open Forum

    I'll bump this back up to the top of Open Forum: The code for SPM members to register for our conference, discounting the fee from $150 to $100, is CHC18SPMMEM ------------------------------ Dave deBronkart SPM Board & e-Patient Dave LLC Nashua ...

  • Posted in: Open Forum

    Great article, thanks for sharing! Using a framework to help patients prioritize desired outcomes is both engaging and impactful. Engaging by enabling the patient to drive the conversation with established priorities and set goals. Impactful because an ...

  • Posted in: Open Forum

    Grace, thank you! Looking forward to attending the Wednesday PM meet up. Conference is around the corner! Mark VanderKlipp Founding Partner, Connect_CX (231) 631-5107 www.connect-cx.com linkedin | twitter ...

  • Posted in: Open Forum

    @Jan Oldenburg has written a great post for this year's #PatientsIncluded conformance statement.  The blog post Social media to click and easily reshare: Twitter      Facebook     LinkedIn Thank you Jan! ------------------------------ Dave deBronkart ...

    1 person likes this.
  • Posted in: Open Forum

    I did get through the registration, and it processed my credit card and then took me to the "do you want to book a hotel?" page.   I'm still waiting for the  confirmation by email. It's not the easiest registration - I had to search the forum here to ...

  • Posted in: Open Forum

    There is another concept I have tried to incorporate with the italicized lines. An appeal to a universal truth. In this case equality. Each italicized line ought to apply to any patient. For a manifesto to have memorable effect the language needs to appeal ...

  • Posted in: Open Forum

    @Danny Sands - I will be curious to hear what happens with an incognito/private browser window. I think a cookie problem would look different from what she describes. I think what she says happens is as follows: She tries to log in but the site ...

  • Posted in: Open Forum

    HI Everyone....just a reminder, if you are patient or caregiver and need funds to go and participate in the SPM conference on Oct 17th this is the last day to submit an application for a patient travel award. https://is.gd/hzAniE ------------------------------ ...

  • Posted in: Open Forum

    Posting this to Open Forum and to the Event Planning SIG ... our efforts are working - registration is running 50% ahead of last year - keep sharing as we spread the word globally!   (And here's our entire series of blog posts about the conference) ...

  • Posted in: Open Forum

    Hi everyone, SPM has partnered with a group of members conducting initial research. Please share and take these surveys as they will be up through the end of October. Aggregate results will be shared back out on SPM and at the National Caregiving Conference.  ...

  • Posted in: Open Forum

    Hi Liza, I'd love to hear more about your study and am also doing work around family caregivers. I also know, virtually anyway, Gary Kreps.  You should also connect with @Sarah Krug as she runs Cancer101. And with @Denise Brown who runs Caregiving.com. ...

  • Posted in: Open Forum

    I just posted the video recordings from the August & September Learning Exchange webinars here:  https://participatorymedicine.org/webinars/ .  If you missed the live webinars, I highly recommend both webinars and think that they offer good content that ...

  • Posted in: Open Forum

    Nancy,  On the page with the options for registering, Don't select attendee. Go to bottom of that screen and select  co-located or Deep Dive session Only Then on the next screen select Society for Participatory Medicine Also, you ...

  • Posted in: Open Forum

    Hi, I'm posting on behalf of two friends, both with very complex cases, who are looking for appropriate care providers. Recommendations and suggestions welcome: The first is recommendations for the son of a friend who will live and work in DC. He ...

  • Posted in: Open Forum

    Regarding our conference, Oct. 17 in Boston: The latest pre-conference blog post is live, by Rasu Shrestha.   Social media links for easy click-and-resharing:  A Tweet to RT SPM Facebook post to share  LinkedIn post to share ...

  • Posted in: Open Forum

    Thanks for the link to the article, Peter. This is, indeed, a huge problem. There seems to be a need for balance between "evidence-based medicine," which is so much the watchword in health care, and remaining open to patient reports of health adversity ...

  • Posted in: Open Forum

    This article,  A New Response to the Data-Centric Future of Healthcare , popped up in my feed today.  There may be some value in some of the article, but the lede stopped me cold: DOS is Health Catalyst's response to a simple truth: The future of healthcare ...

  • Posted in: Open Forum

    Please share to your networks! A tweet you can open, for easy retweeting: https://twitter.com/ePatientDave/status/1041687873374875649 FB post for easy re-sharing: https://www.facebook.com/epatientdave/posts/10216287172029767 ...

  • Profile Picture

    METRICS for metrics

    Posted in: Open Forum

    I post a link to this article because I think it demonstrates that we (the participatory medicine advocates) have made progress. The article is a short commentary published in the WMJ, the journal associated with the Wisconsin Medical Society. (Disclaimer: ...

  • Posted in: Open Forum

    Conference page with full links to reg, agenda, the whole nine Poetry for Personal Power is working on attending this conference in force in service of its PCORI grant aimed at determining the research priorities on the person/patient side of behavioral ...

  • Posted in: Open Forum

    Are you organized? Good with numbers? Are you a leader who wants to hone your skills? What would you think about managing a corporation with a multi-million dollar budget ? Too big? Then consider running for treasurer of SPM. We're currently identifying ...

  • Posted in: Open Forum

    Ken, Yes, I agree with all you say, and I think that is the ultimate goal. The problem is, what do you have to talk about? If we are not gathering the right information about each of these issues, how can there be a discussion, much less sharing of ...

WELCOME.

We're glad you found us.

JOIN US!

 

The Society for Participatory Medicine (SPM) is a community dedicated to helping patients, caregivers, and health professionals work collaboratively to meet the patient's health needs, as defined by the patient. You are visiting a tool we use for communication and collaboration within our community. This list of recent posts in our Open Forum provides a flavor of the wide variety of topics and projects of importance to members of our SPM community. There is much more available to members of the Society.

 

We encourage you to visit our SPM website, where you can learn much more about us, including:

 

Our active participatory medicine community based on the four CARE pillars of Communication, Advocacy, Research and Education. We would love to have you join us.

 

Joseph Ternullo (President)
Susan Woods (President-Elect)
Jonathan Wald (Past President)
John Grohol (Treasurer)
Nancy Finn (Secretary)
Peter Elias (Member-at-Large)
Tracy Zervakis (Member-at-Large)
Danny Sands (Board Chair)
Sarah Krüg (Acting Executive Director)
Mandi Bishop
Kyra Bobinet
Donna Cryer (on leave)
Judy Danielson
Dave deBronkart
Joe and Terry Graedon, (Co-Editors of JoPM, members ex-officio)
John Hoben
Bruno Nardone
Jane Sarasohn-Kahn (on leave)
Charlie Smith (Editor of JoPM, member ex-officio)
Kenneth P. Yale

Most Active Members (based on last 30 days)